Tuesday 30 April 2013

'Ding'...Round 3

Apr 16 - 30, 2013

So, to recap....Challenge in conjunction with the Richmond Football Club, offered Mitchell the opportunity to run out onto the MCG with the team at the against Collingwood.

Mitch and Harry K
Melbourne-town turned on a pearler of an Autumn day.  When we arrived we were greeted by the very excellent Tigers PR crew.  We met up with Thomas, the other little boy who was involved too and were taken down to the warm-up room with Aussie international soccer star, Harry Kewell in tow; he was doing the 'coin toss' for the day.  We saw the boys doing their final warm-up and met ex-captain Wayne Campbell.  Just before game time Mitch met and held the hand of 'gun' midfielder Brett Deledio.  They were taken up the race and on to the ground in front of the 85,000 strong crowd.  Through the banner with Captain Chris Newman and into the centre square and then back to the sidelines with Tiger Stripes.

Mitch, Stripes and Tom


The Mighty G










The 5 days in hospital the following week were fairly standard and ANZAC Day on the Thursday meant I could spend the day in and give Lis a rest.

This week we also got an update on the next phase of treatment and it wasn't quite as expected.  We thought that 'Maintenance' would follow 'Interim Maintenance' but not so.  The next phase for Mitch is called 'Delayed Intensification'.  This phase is nearly as intense as Induction.  So, back to a bit of a hard slog.

All done and home on the Friday night as scheduled (yay!) followed by a normal weekend full of netball, gardening and a little relaxing.

Monday was looking good for school but ongoing nausea meant he lasted only a couple of hours and only 40 minutes on Tuesday.  Let's hope it gets better for the rest of the week...

Tuesday 16 April 2013

Boring is good....

Apr 4 - 15, 2013

I figure the fewer posts I do from now on, the better.

Round 2 of Interim Maintenance was a tad boring....which is good.

Mitch pretty much stops eating when he goes into hospital, so loses any weight he puts on when he's home, but his spirits were generally high for the 6 days he was in this time.
An interesting rash is about as exciting as it got medically this time.

Six long days of lying in bed connected to bags of various concoctions.  First a good flush that results in lots of peeing.  Then a slow bag of toxins, followed by more flushing with saline and 'antiserum'.....and lots of peeing - day and night.  Mitch definitely doesn't suffer from a shy bladder.  He can pretty much pee in front of anyone...and does.

Lots of visits again from nurses, doctors, social workers, play therapists, art therapists, teachers, Clown Doctors, etc., etc.  Challenge also visited and offered some footy tickets for the Tigers - Doggies clash; bonus!  They also offered Mitch an opportunity to "run" onto the ground with the Tigers before their match against Collingwood at the 'G' the following weekend, so (if all goes according to plan) keep your eyes out if you are watching the game and you might see him on telly.

Bubble Boy
School term 2 has started well.  Two out of two days so far and looking good up until Friday when we have a blood test and doctors appointment in at RCH in preparation for Round 3, which is slightly delayed to accommodate our appointment at the MCG on Saturday. 
Go Tiges!

Wednesday 3 April 2013

Easter Break

Mar 25 - Apr 3, 2013

Happy Easter All.

It took a few days to recover after the end of the previous block, with a few worrying tummy pains, but the expectation of a holiday made for a speedy recovery.

For once the timing of treatment was kind to us and we were all able to get away for the Easter long weekend and enjoy time with friends.  Mitch enjoyed some sunshine, feeding the ducks, board games and some leisurely walks.

Easter 2013 - Nagambie

Blood test results on Tuesday indicated that platelets were a little low to begin the next round of treatment planned for Wednesday, so it's hold off on the meds and back in on Friday.
His appetite has returned this week and even a little weight gain.  So we'll try and get as much into him before Friday when the inevitable 'fasting' begins again.

Short, sweet and good!